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W. Boerckel
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P3.11 - Patient Advocacy (ID 727)
- Event: WCLC 2017
- Type: Poster Session with Presenters Present
- Track: Patient Advocacy
- Presentations: 1
- Moderators:
- Coordinates: 10/18/2017, 09:30 - 16:00, Exhibit Hall (Hall B + C)
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P3.11-002 - Immunotherapies and Lung Cancer: Educating the Global Lung Cancer Community (ID 10178)
09:30 - 09:30 | Author(s): W. Boerckel
- Abstract
Background:
Established in 2001, the Global Lung Cancer Coalition (GLCC) is the international 'voice' of lung cancer patients. Comprised of 35 non-government patient organizations in 24 countries and the UK, nearly half of member organizations are run by fewer than five staff or are completely volunteer-run. Several meet the criteria of developing countries under the United Nations definition. The option of immunotherapy treatment is still relatively new in lung cancer and smaller, under-resourced member organizations have neither the expertise nor capacity to create credible educational materials on such a complex subject. The goal of this project was to offer information on immunotherapies to educate the global lung cancer community.
Method:
Created by coalition member representatives and reviewed by medical experts, the Immunotherapy and Lung Cancer factsheet provides an overview of immunotherapies and how they work. It has been professionally translated into the 17 primary languages of GLCC organizations and is available on the GLCC website. Member and non-member organizations and individuals can download the factsheet to help patients all over the world understand this new treatment option for lung cancer.
Result:
In the first six months after the October 2016 re-launch of the GLCC website, the factsheet was downloaded 276 times. At the December 2016 annual in-person meeting of GLCC, the coalition voted to prioritize and expand the effort to produce and translate additional educational materials. GLCC members are currently working on lung cancer screening and smoking cessation materials that will also be translated.
Conclusion:
An international coalition can take the lead in providing not just members but the broader global lung cancer community access to resources otherwise unavailable to them. Available in Chinese, Japanese, Danish, Slovenian, Dutch, Bulgarian, Swedish, German, Spanish, Italian, French, Norwegian, Turkish, Hebrew and English, the Immunotherapy and Lung Cancer factsheet, as well as future materials, are available to individuals, cancer providers and organizations from anywhere in the world to download, print and distribute.
