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P. Barthe-Vonsy



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    P2.11 - Patient Advocacy (ID 712)

    • Event: WCLC 2017
    • Type: Poster Session with Presenters Present
    • Track: Patient Advocacy
    • Presentations: 1
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      P2.11-001 - Evaluation of a Cultural Notebook of Self-Expression and Follow-Up Among Patients with Lung Cancer in French Polynesia (ID 9600)

      09:30 - 09:30  |  Author(s): P. Barthe-Vonsy

      • Abstract
      • Slides

      Background:
      The management of lung cancer (LC) in French Polynesia may pose problem, especially intercultural communication between patients (PT) and health professionals (HP).

      Method:
      Attractiveness, use and utility of a PT’s self-expression and follow-up cultural notebook “A Haere I Mua”, was evaluated among 171 HP (self-administrated questionnaires) and among 35 PT suffering from incurable LC (interview). Comparisons were made between PT and HP (Fisher’s test).

      Result:
      The notebook pleased PT and HP (77.4%, 81.3% respectively), especially its images (90.3%, 81.3%), texts (80.6%, 69.6%) and expression areas (87.1%, 63.7%) (p>0.05 for all). PT’s health representations were focused on hope and future (the canoe and "A Haere I Mua"), HP’s ones on care and present (storm and difficult times).The subgroup of the Polynesian PT better made the connection with the disease (p = 0.02) and have a better perception of expression areas (p = 0.004) than the HP. While 80.6% of PT consulted the notebook, only 38.7 % used it. The Polynesian PT were more likely than the HP to have found the notebook useful (13/15 items p≤ 0.05), expect for the items "say or write things that I do not dare to say" (p=0.32) and "be better understood" (p=0.11).

      Conclusion:
      The notebook “A Haere I Mua” is an intercultural communication tool adapted to the Polynesian PT. It could be used in the announcement program and supportive cares, but requires training of the HP and a greater awareness of the PT. It may also contribute to the emergence of a project of integrative medicine for lung cancer in French Polynesia.Figure 1



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