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Danielle Hicks
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P3.11 - Patient Advocacy (ID 727)
- Event: WCLC 2017
- Type: Poster Session with Presenters Present
- Track: Patient Advocacy
- Presentations: 1
- Moderators:
- Coordinates: 10/18/2017, 09:30 - 16:00, Exhibit Hall (Hall B + C)
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P3.11-003 - Addario Lung Cancer Foundation Patient Education Handbooks Fill a Health Literacy Void for Patients and Nurse Navigators (ID 10444)
09:30 - 09:30 | Presenting Author(s): Danielle Hicks
- Abstract
Background:
A lung cancer diagnosis is devastating and patients are often left in shock and seeking trusted resources. The Addario Lung Cancer Foundation (ALCF) provides patient education and support resources, including the patient education handbook. The handbook is a comprehensive resource on lung cancer presented in an easy-to-navigate format, written for the general public, produced in multiple languages and updated to keep pace with emerging advancements. Previous studies have shown that health literacy is correlated with patient engagement and outcomes. The handbook fills a void for patients by providing physician-vetted information on all aspects of lung cancer diagnosis and treatment options.
Method:
Two studies were conducted to assess the value of the handbook to patients and nurse navigators. The first study was a qualitative market research study that included a total of 26 patient interviews, conducted by an independent market research firm in a blinded format. The second study was the COE Impact Study which assessed the usage of ALCF resources by 15 Centers of Excellence (COE) members (a network of community hospitals) through an online survey format.
Result:
Overall, patients had positive ratings for all ALCF resources and rated the handbook highest on a 1-5 point scale system (4.4) among the resources. Patients commented that the handbook is a “one-stop-shop” for everything they need to know about a lung cancer diagnosis. Patients noted it would be most valuable to have at the time of diagnosis but that it can help at any point in their patient journey. It delivers information in a straightforward way, mapping out treatment options and next steps and empowering patients to help them manage side effects and related lifestyle issues. Nurse navigators also rated the handbook highest among ALCF patient resources and many make the handbook part of the diagnosis conversation with each patient.
Conclusion:
The patient education handbook is a valuable tool for patients and nurse navigators, especially at diagnosis when the need for trusted information is greatest. Opportunities exist to continuously improve the patient education handbook including, reformatting it to be modular, coaching patients on how to use the information to dialog with their physicians and training nurse navigators on how to use the book when they first become a COE. ALCF hopes to reach and empower as many lung cancer patients as possible with valuable and accessible information that will guide their treatment options.
