Author of

• 18718

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  P3.05 - Poster Session with Presenters Present (ID 475)

  • Event: WCLC 2016
  • Type: Poster Presenters Present
  • Track: Palliative Care/Ethics
  • Presentations: 1
  • Moderators:
  • Coordinates: 12/07/2016, 14:30 - 15:45, Hall B (Poster Area)

  • 18731

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    P3.05-013 - Development of the Kentucky LEADS Collaborative Lung Cancer Survivorship Care Program (ID 4979)

    14:30 - 14:30  |  Author(s): J.L. Burris
    • Abstract

    Background:
    Individuals diagnosed with lung cancer commonly suffer many threats to preserving quality of life, including substantial symptom burden, clinically significant distress, limited social and economic resources, and considerable stigma/bias. Despite these notable challenges, relatively little clinical research is dedicated to developing, evaluating, and disseminating survivorship interventions that address the unique experience of lung cancer survivors and their caregivers.
    
    Methods:
    To expand and enhance lung cancer survivorship care, the investigative team developed a targeted and tailored psychosocial intervention to address the diverse needs of lung cancer survivors and the challenges faced by their caregivers. Principles of motivational interviewing and shared decision making guided the design of the Kentucky LEADS Collaborative Lung Cancer Survivorship Care program, a flexible and scalable survivorship intervention.
    
    Results:
    Selection of intervention content was guided by a review of the literature, input from experienced lung cancer survivorship care clinicians, and feedback from an engaged community advisory board. During the development phase, the investigative team confronted the challenge of designing a psychosocial intervention that could be feasibly delivered in diverse cancer care settings and would be acceptable to an underserved and stigmatized population. To promote implementation feasibility, the investigative team “designed for dissemination,” creating an intervention that was discipline, delivery, and setting neutral. To enhance program acceptability, intervention design focused on common unmet needs and involves a content menu that allows lung cancer survivors to select modules aligned with their personal concerns and preferences. After conducting online and in-person interventionist training, program feasibility, acceptability, and preliminary efficacy are being evaluated in a single-arm trial in 10 Kentucky (USA) cancer care facilities. Approximately 300 lung cancer survivors and caregivers are completing three waves of validated patient-reported outcome measures and program acceptability assessments. Measures are being administered at baseline (PRE), immediately after the intervention (POST), and six months after baseline (FOL).
    
    Conclusion:
    Individuals diagnosed with lung cancer and their caregivers remain an underserved and stigmatized group. With the emergence of lung cancer screening and innovations in lung cancer care that are leading to improved lung cancer outcomes, there is need to invest in lung cancer survivorship research, including the development of survivorship interventions. Based on initial study results, the investigative team plans to modify the survivorship care intervention and training program and then conduct a group randomized trial of the Kentucky Lung Cancer Survivorship Care Program, which will be tested against an enhanced usual care condition in collaboration with the Kentucky Clinical Trials Network.