Author of

• 16722

  +

  P1.04 - Poster Session with Presenters Present (ID 456)

  • Event: WCLC 2016
  • Type: Poster Presenters Present
  • Track: Pulmonology
  • Presentations: 1
  • Moderators:
  • Coordinates: 12/05/2016, 14:30 - 15:45, Hall B (Poster Area)

  • 16750

    +

    P1.04-028 - Collection of ICHOM-Defined Patient-Reported Outcome Measures (PROMs) during Routine Lung Cancer Treatment: A Pilot Study (ID 5476)

    14:30 - 14:30  |  Author(s): A. Janssens
    • Abstract

    Background:
    PROMs -including symptoms, health related quality of life, well-being and functional status- are commonly measured in clinical trials. They are used in a variety of ways, including therapy decisions on individual patient level or research into disease progression. Optimizing how patients feel is a goal of good oncology practice and a quality performance indicator of care. Therefore it is important to implement the collection of PROMs during routine lung cancer treatment without disturbing the routine workflow. The International Collaboration on Health Outcomes Measures (ICHOM) has proposed a standard set of uniform PROMs for lung cancer (Mak et al, ERJ 2016).
    
    Methods:
    A pilot study is set up to establish an operational workflow and to identify trouble shooting to the collection of PROMs in standard of care. Self-reporting by the patient is conducted via a web-based interface using questionnaires and individual case-mix variables according to the ICHOM standard set. At baseline, during treatment and in follow up patients receive electronic invitations. Computer-inexperienced patients have the opportunity to complete paper forms.
    
    Results:
    A gap analysis was done and a swim lane algorithm constructed which will be presented at the meeting. From February 2016 onwards, 24 patients were screened of whom 11 consented. The other 13 patients were screen failures because of language barrier, previous therapy start or mental confusion. From the enrolled patients, 2 are currently in follow up and 5 patients choose to complete PROMs on paper forms. Updated results on compliance and outcome in 50 patients will be brought at the meeting.
    
    Conclusion:
    Participants’ profile reflect a tertiary setting hospital with many referrals and patients, unable to complete the PROM’s. To optimize the inclusion rate, several adaptations in the implementation workflow have been introduced. Although the registration of PROMs is not very time-consuming, real-time monitoring requires a user-friendly online tool and dedicated staff. Lessons from this pilot study will be applied when rolling out other ICHOM standard sets.