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  PA01 - Lung Cancer Diagnosis and Care: Identifying and Improving Community Standards (ID 356)

  • Event: WCLC 2016
  • Type: Patient & Advocacy Session
  • Track: Patient Support and Advocacy Groups
  • Presentations: 1
  • Moderators:B.J. Addario, B. Bajec
  • Coordinates: 12/05/2016, 11:00 - 12:30, Schubert 6

  • 16385

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    PA01.01 - The Importance of Patient Access to Molecular Testing and Novel Therapies (ID 6744)

    11:00 - 11:20  |  Author(s): J. Freeman-Daily
    • Abstract
    • Presentation
    • Slides

    Abstract:
    Advances in lung cancer diagnosis and treatment are enabling many metastatic cancer patients to live months or years longer than ever before. Best practices in lung cancer detection, diagnosis, and treatment are changing so fast that keeping current with new developments is difficult for many healthcare providers-- more new drugs have been approved for lung cancer in the past five years than in the previous five decades. While testing for useful biomarkers such as EGFR, ALK and ROS1 is becoming more common, such tests are not yet standard procedure in many settings. Some patients who have limited tissue or who are interested in pursuing clinical trials might benefit from liquid biopsies or next generation sequencing (NGS) panels, but such tests might not available to them for a variety of reasons: the healthcare provider may be unfamiliar with the test or unconvinced of its merits, the facility may not have the technology or expertise to conduct the testing, or insurance may not cover the test. Even if the testing finds an actionable biomarker, patients may have difficulty obtaining novel therapies if those therapies are not approved or covered by insurance, or they may have trouble identifying and accessing appropriate clinical trials. Some biomarkers, such as PD-L1, are also less ‘definitive’ or standardized than others. This presentation discusses ways that patient access to molecular testing and novel therapies can not only improve lung cancer outcomes, but also help engage patients as partners in their own care and accelerate research through patient-driven data sharing.
    
    

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