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J. White
Moderator of
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O26 - Support and Palliation II (ID 140)
- Event: WCLC 2013
- Type: Oral Abstract Session
- Track: Nurses
- Presentations: 8
- Moderators:J. White, Y. Lai
- Coordinates: 10/29/2013, 16:15 - 17:45, Bayside 104, Level 1
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O26.01 - The impact of the lung cancer clinical nurse specialist on access to anti-cancer treatment (ID 1018)
16:15 - 16:25 | Author(s): A.M. Tod, A. McDonnell, J. Redman, J. White, D. Borthwick
- Abstract
- Presentation
Background
The National Lung Cancer Audit (NLCA) (NHS Information Centre, 2011) reports annually on services provided to 38,000 lung cancer patients in the nited Kingdom (UK). The 2010 NLCA reported that only 58% of lung cancer patients in England and Wales received active treatment (chemotherapy, surgery and radiotherapy), with only 14% of patients receiving surgery. Lung Cancer Nurse Specialists (LCNS) make an important contribution to patient care and patient experience and their input is captured in the audit. The 2010 NLCA revealed a possible association between access to a LCNS and access to treatment: 64% of patients seen by a LCNS received anti-cancer treatment compared to 30% of those who did not (Ford, 2011, The Lancet 2011). The reason for this observation cannot be ascertained from the NCLA data. Thus investigation outside of the audit is required. This study begins that process using case study methodology. The study is funded by a grant from the General Nursing Council Trust. The aims of this study are to explore the role of the LCNS within the lung cancer multi-disciplinary team (MDT), identify ways the LCNS can increase treatment access for people with lung cancer and generaterecommendations for MDTs and for future research.Methods
A collective case study, comprising four individual LCNS in four different lung cancer MDTs (McDonnell, 2012, Stake 1995). LCNS cases were selected on the basis of variation in access to treatment rates and access to a LCNS according to the NLCA data. The four LCNSs also had different models of working within the MDT and patient pathway. Methods included in-depth individual interviews with the LCNS and clinical lead plus four other MDT members, giving a total interview sample of 24. Observation of practice and documentary analysis were also used. Findings will be tested further in group interviews over the summer.Results
These findings provide insight into how the LCNS works across the patient pathway to influence access to treatment, while maintaining patient preference as central to practice. The findings are presented here in four themes: practice approaches, people, places and facilitators, with illustrations of how factors combined to increase or decrease access to treatment. Approaches to LCNS practice identified in the study included negotiating, brokering and co-ordinating in order to maximise treatment access and maintain patient focus. The range of people and places the LCNS works with across different disciplines, services and health sectors means they become the lynchpin to clinical treatment decisions. The study indicates how workload, relationships, job security and organisational structures operate as key facilitators to effective treatment decision makingConclusion
This in-depth qualitative study provides valuable insights into the complex landscape that MDTs operate within and helps to explain why the observed association between seeing a LCNS and access to treatment may occur. The study illustrates the value of qualitative research in understanding quantitative data such as that generated by national registries and audits. Recommendations for MDTs and data capture in the NLCA audit are considered.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.02 - Understanding the Value of Lung Cancer Nurse Specialists (ID 2243)
16:25 - 16:35 | Author(s): J. White
- Abstract
- Presentation
Background
The UK National Lung Cancer Forum for Nurses together with the Roy Castle Lung Cancer Foundation have produced a report which aims to showcase the difference Lung Cancer Nurse Specialists (LCNS) make to the lives of patients with lung cancer and their families. Eleven recommendations were made after an examination of peoples experiences of care delivered by LCNSs in addition to LCNSs own accounts of how they help to improve patient outcomes. The recommendations, combined with existing evidence of the positive impact of LCNSs on patient experience from the Cancer Patient Experience Survey and outcomes shown in the National Lung Cancer Audit, builds a compelling picture of the positive value of LCNSs. The report is called Understanding the Value of Lung Cancer Nurse Specialists.Methods
The National Lung Cancer Audit data was used to gather information about whether patients had been seen by a LCNS and at what point in their pathway. A survey was conducted of patients with lung cancer and their carers with the aim of uncovering people`s experiences of the care delivered by LCNS. A survey of LCNS own accounts of how they help to improve patient outcomes was also undertaken. Information was taken from the Cancer Patient Experience Survey in England to assess the influence that Clinical Nurse Specialists had on the patient`s experience of care. Evidence was analysed from a number of different sources to highlight the potential efficiency savings that LCNS could make due to their role.Results
Results from the Cancer Patient Experience Survey showed that one of the most important findings being that those patients with access to a CNS gave more positive scores of experience than those without. When considering efficiency savings, one study found that service improvments along the lung cancer pathway led by LCNS could release about 10% of cancer expenditure in the area. The National Lung Cancer Audit revealed that around two thirds of patients seen by a LCNS went on to receive active treatment compared to less than a third who did not see a LCNS who were given active treatment.Recommendations from the report
1 LCNS should be involved in the pre-diagnostic phase of care of suspected patients with lung cancer 2 All national clinical guidelines on lung cancer treatment should reflect the important role played by LCNS 3 NHS Commissioners / providers should ensure that there are sufficient numbers of LCNS 4 All patients should have equitable access to a LCNS at the time of diagnosis 5 LCNS posts should be protected to ensure that patients and their families are offered adequate support 6 LCNS should be provided with necessary resources to aid smoking cessation 7 More research should be undertaken to understand the reasons for the correlation between LCNS input and receipt of active treatment 8 LCNS follow up after treatment should be offered to all patients 9 LCNS should be encouraged to offer nurse led clinics 10 LCNS should be recognised as the patient`s advocate at multidisciplinary team meetings to deliver patient centered care 11 Patients with lung cancer should have access to a LCNS at all stages of their pathway including end-of-life care Conclusion
The report examines the information made available and the role of the LCNS with the aim of helping to understand that vital contribution they make to the delivery of high quality care and to improved outcomes for patients with lung cancer. The report can be found at http://www.roycastle.org/Resources/Roy%20Castle/Documents/PDF/UnderstandTheValueOfLungCancerNurseSpecialists_V03.pdfOnly Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.03 - Is early integration of palliative care for patients with incurable lung cancer acceptable to Australian healthcare professionals? (ID 2596)
16:35 - 16:45 | Author(s): L. Mileshkin, B. Le, K. Doan, O. Spruyt, M. Conron, D. Gunawardana, S. Carvosso, D. Saward, J. Philip
- Abstract
- Presentation
Background
In a recent landmark US study, metastatic NSCLC patients who received palliative care from the time of diagnosis concurrently with standard oncology management reported improvements in quality-of-life, symptom control, reduction in “aggressive therapies” at end-of-life, and a survival advantage compared to those receiving standard oncology management alone. The aim of this qualitative sub-study was to explore Australian health care professionals’ perceptions of early integration of palliative care for patients with incurable lung cancer.Methods
Members of the lung cancer multi-disciplinary teams of three large metropolitan teaching hospitals in Melbourne were invited to attend a focus group discussion. Data from focus groups were supplemented with interviews from a purposive sample of individual health care providers who were unable to attend the groups. Participants were asked to describe barriers and facilitators to implementation of a model of early integration of palliative care.Results
Three focus groups and six individual interviews were conducted with 28 health care professionals. Key facilitators and barriers to referral (see table) were grouped into 4 themes: 1. Trust; 2. Care Coordination; 3. Ease of Referral; and 4. Perceived patient/family reaction.Key themes Issues discussed as facilitators / or barriers Trust 1. Confidence in the quality of the palliative care service 2. Palliative care poses a threat to the referrer 3. Past experience with community palliative care Care Coordination 1. Integration of concurrent palliative care and "active treatment" 2. Concern about adding to fragmented care and lack of co-ordination 3. Effective Communication between care providers Ease of Referral 1. The value of a physical presence of the palliative care provider in the clinic 2. Perception of limited resources Perceived patient/family reaction 1. Cultural perceptions about what referral to palliative care means 2. Concern about patient and/or family reaction to referral leading to distress and loss of hope Conclusion
Early involvement of palliative care in patients with incurable lung cancer is acceptable to the majority of treating clinicians. Palliative care services must be embedded into the system, sufficiently resourced and of high quality. For early referral to occur the model ideally involves a physical presence of a palliative care clinician in clinic who is easily accessible for referrals and considered a core team member.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.04 - DISCUSSANT (ID 4010)
16:45 - 17:00 | Author(s): M. Duffy
- Abstract
- Presentation
Abstract not provided
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O26.05 - Patterns of care in palliative radiotherapy delivery in advanced lung cancer: How has this influenced the development of a Palliative Radiotherapy Rapid Assessment Clinic (PRRAC)? (ID 3060)
17:00 - 17:10 | Author(s): K. Pope, C. Liu, N. Michael, C. Fitzpatrick, A. Rutyna, W. Poon, J. Vassie, J.H. Foo
- Abstract
- Presentation
Background
Radiotherapy (RT) is a clinically and cost effective modality of treatment for symptom palliation. It plays a significant role in advanced lung cancer, by providing relief from symptoms such as haemoptysis and bone pain, as well as preserving neurological function in patients with brain metastases or spinal cord compression. The standard clinical approach for RT may require multiple attendances for consultation and planning, followed by a waiting period for treatment. However, patients with advanced lung cancer presenting for palliative radiotherapy are often of poor performance status with limited life expectancy. Prompt and streamlined RT is required to improve the experience of care for these patients. The Palliative Radiotherapy Rapid Assessment Clinic (PRRAC) was developed as an innovative and sustainable clinic to align consultation, planning and treatment within a single visit to facilitate efficient access to palliative radiotherapy for patients with advanced lung cancer. The PRRAC aims to i) increase accessibility of palliative RT for symptomatic patients with lung cancer, ii) reduce waiting times and iii) improve patient and referrer satisfaction.Methods
A retrospective audit of symptomatic patients with lung cancer who received low dose palliative RT from June – November 2012 at Peter Mac, East Melbourne was performed. Patient demographics, dates of initial clinic, planning and RT commencement, and RT dose fractionation schedules were collected. A service model (PRRAC) was developed based on the adaptation of similar clinics in operation in Canada and Brisbane, Australia. The proposed PRRAC will be piloted for 6 months. Eligibility criteria include those patients with symptomatic locally advanced or metastatic lung cancer who require low dose simple RT techniques. Service utilisation and average waiting times will be compared to previous patterns of care. Patient outcomes and surveys of referring physicians will be evaluated prospectively. Overall utilisation of the service will help assess clinical need & sustainability.Results
The retrospective audit has demonstrated 79 patients with lung cancer who were prescribed low dose palliative RT. The mean age was 70 years and 17% of patients were ECOG status >3. The mean waiting time from initial clinic assessment to planning was 3.6 days (SD 3.7), and from planning to RT commencement was 5.4 days (SD 5.1). 48% of patients were prescribed a single dose of RT. The early results and challenges in developing the prospective PRRAC as a new model of care for patients with lung cancer will be presented.Conclusion
The PRRAC is expected to improve access of patients to palliative radiotherapy, and shorten waiting time from clinic to RT commencement date with less visits and potentially shorter dose fractionation schedules. It is anticipated that PRRAC will also improve patient and referrer satisfaction. Following successful completion of the project, the PRRAC will be embedded into clinical practice, and extended to other tumour streams.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.06 - Impact of geriatric assessment on treatment decisions in older lung cancer patients. (ID 1419)
17:10 - 17:20 | Author(s): L. Vanacker, C. Kenis, K. Van Puyvelde, J. Flamaing, D. Schallier, J. Vansteenkiste, G. Conings, K. Nackaerts, J.P. Lobelle, K. Milisen, J. De Grève, H. Wildiers, L. Decoster
- Abstract
- Presentation
Background
This study aims to investigate the influence of a geriatric assessment (GA) on cancer treatment decisions in older lung cancer patients (pts). We also studied the changes in functionality during treatment and the occurrence of severe chemotherapy-related toxicity.Methods
For this analysis, we selected the lung cancer cohort that was part of a larger study on GA in older cancer pts in 6 tumor types in two Belgian university hospitals[1]. Between July 2009 and September 2011, pts aged 70 years or older with a newly diagnosed or progressive lung cancer were evaluated at baseline using a uniform GA including geriatric screening with G8 and the Flemish Triage Risk Screening Tool (fTRST), pain, social data, Activities of Daily Living (ADL), Instrumental Activities of Daily Living (IADL), fall history, Mobility-Tiredness Test (MOB-T), Mini Mental State Examination (MMSE), Geriatric Depression Scale (GDS-15), Mini Nutritional Assessment (MNA), ECOG-Performance Status (ECOG-PS), Charlson Comorbidity Index (CCI) and poly-pharmacy assessment. GA results were communicated to the treating physician and, after the treatment decision, the physician was interviewed using a predefined questionnaire focusing on unknown geriatric problems revealed by GA and impact on cancer treatment decisions. Between two and three months of follow-up, functionality was reassessed and severe toxicity in pts receiving chemotherapy was recorded.Results
Seventy three lung cancer pts were included with a median age of 76 years; 82.2% were non-small cell lung cancer (NSCLC) and 74% were stage IV. Treatment was modified from standard according to standard clinical assessment (including age) in 56.1%. GA revealed unknown geriatric problems in 25.8% of cases, leading to a geriatric intervention in 10.6%. 30% of physicians consulted the GA before final treatment decision and in three pts (4%) only this led to a modification of the proposed treatment: dose reduction, no chemotherapy or no radiotherapy. At follow up (n=50), functional decline was observed in 24% and 54% of pts for ADL and IADL, respectively. Grade III-IV toxicity occurred in 14/42 pts treated with chemotherapy (33%), mainly non-haematological (64%).Conclusion
This analysis indicates that the treatment of older lung cancer pts is often influenced (deviated from standard) by standard clinical assessment and age. Although GA revealed previously unknown information in 25.8% of pts, only a minority of physicians consulted these results before the final cancer treatment decision. There was little impact on geriatric intervention and even less on cancer treatment decision. This discrepancy reveals the need to get physicians treating lung cancer acquainted with GA and geriatric interventions in an attempt to decrease chemotherapy related toxicity and improve quality of care. Further evaluation of GA and geriatric interventions in larger pt groups as well as their implementation in clinical practice is warranted.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.07 - Towards Cancer Rehabilitation at Home<br /> Design of a Telerehabilitation Service for Lung Cancer Patients (ID 2697)
17:20 - 17:30 | Author(s): J.G. Timmerman, T.M. Tönis, M.W.J.M. Wouters, M.G.H. Dekker-Van Weering, H.J. Hermens, M.M.R. Vollenbroek-Hutten
- Abstract
- Presentation
Background
Although lung resection still provides the best long-term outcome for lung cancer, it is also associated with a considerable decay in physical and psychosocial health status[1,2]. If not controlled, these symptoms can hamper postsurgical recovery, and lead to unscheduled healthcare use[3]. This study aimed to determine the clinical relevance of and functional requirements for a telerehabilitation (TR) service to support recovery following lung resection.Methods
A sociotechnical scenario-based design approach was used, characterized by early and systematically involvement of patients and healthcare providers during an iterative design process (figure 1). First, end users’ requirements for the TR service were explored by means of semi-structured interviews. Subsequently a small focus group with healthcare providers from the Netherlands Cancer Institute – Antoni van Leeuwenhoek hospital (NKI-AVL) in Amsterdam was organised to establish requirements for the TR service in more detail. The findings from the interviews and focus group were summarized in a scenario and validated by healthcare professionals from the NKI-AVL. Figure 1Results
Survivors and professionals expected a TR service to be beneficial for improving quality of current care, and identified three modules that should be included in the TR service: ambulant monitoring of recovery and symptoms, home exercise programs and patient-provider contact. The functional requirements for these three modules and general requirements as reported by the patients and professionals are presented in table 1. The results also indicated that successful implementation of the service will be promoted by structurally embedding the service in existing healthcare processes, and record clearly the specific roles and responsibilities of all involved healthcare professionals. Figure 1Conclusion
End-users showed positive intention to use a TR service for home-based symptom monitoring and rehabilitation. At this moment, a prototype of the TR service is designed, which will be evaluated this summer in patients and healthcare providers to improve end-users’ acceptance.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.08 - DISCUSSANT (ID 4011)
17:30 - 17:45 | Author(s): P. Yates
- Abstract
- Presentation
Abstract not provided
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Author of
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GR02 - Is There a Role for the Thoracic Oncology Nurse in Ensuring Patients with an Advanced Lung Cancer have Access to Early Phase Clinical Trials? (ID 17)
- Event: WCLC 2013
- Type: Grand Round Session
- Track: Nurses
- Presentations: 2
- Moderators:C. Broderick, M. Hesdorffer
- Coordinates: 10/29/2013, 10:30 - 12:00, Bayside Gallery A, Level 1
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GR02.2 - Affirmative (ID 452)
10:50 - 11:05 | Author(s): J. White
- Abstract
- Presentation
Abstract not provided
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GR02.3 - Negative (ID 453)
11:05 - 11:20 | Author(s): J. White
- Abstract
- Presentation
Abstract
Cancer is the leading cause of death in the world, accounting for approximately 7.6 million deaths in 2008. Lung cancer accounted for 1.37 million of those deaths.Identification of molecular markers in lung cancer has lead to the development of targeted therapies resulting in improved survival in selected groups of lung cancer patients. Despite the advancements in treatments, the survival for patients with lung cancer, particularly in the metastatic or locally advanced patients (stage IIIb/IV), is generally poor with a 5-year survival of only 6%. The current poor prognosis and latest advances made in the field of lung cancer highlight the importance of clinical trial development, participation and analysis. Participation in clinical trials for the general cancer patient’s is low, between 5-9%. This low percentage is similar to those seen for lung cancer patients. Early stage clinical trials have a smaller number of participants by design and are aimed at establishing a maximum tolerated dose of a drug or treatment, not establishing efficacy.These clinical trials are not designed with curative intent but rather are designed to evaluate drug absorption, distribution, metabolism, excretion and mechanism of action. Only a small number of cancer patients and even a smaller number of advanced stage lung cancer patients enroll into phase I clinical trials. The number of international clinical trials has seen a rapid increase over the past decade. Recently the Office of Inspector General (OIG) reported that as of 2008, 80% of marketing applications for drugs and biologics approved by the US Food and Drug Administration (FDA) contained data from US clinical trials conducted outside of the USA. Despite the importance and availability of clinical trials for lung cancer, participation in early stage clinical trials by advanced stage lung cancer patients remains very low. There are multiple barriers that contribute to these low numbers of participants, some of which include: (1) fear of unknown benefit from the investigational treatment, (2) negative family and family physician influence, (3) logistical and attitudinal constraints – too cumbersome to participate and not willing to be the subject of “experiments”, (4) lack of knowledge, understanding and fear of the complexities of the clinical trial, (5) risk of inability to tolerate related investigational drug / treatment toxicity due to more weaken condition and (7) financial and insurance barriers.Identifying and overcoming the barriers that exist for each patient early in their diagnosis has the potential to improve both the quality and quantity of their lives and potentially help others with the same barriers in the future. Another significant barrier is the real and perceived conflict that exists between the need for palliative and/or Hospice levels of care for advanced stage lung cancer patients. The need for Hospice benefits and palliative care can and does have a significant impact on the decision to participate in early stage clinical trials to the point that participation may not even be an option. Funding and other system related issues act as barriers to participation in early stage clinical trials as well as the philosophical basis of the hospice/palliative care approach to treatment/care. Over the past decade the availability of symptom management and palliative care clinical trials has increased the awareness of this barrier and in many respects further clouded the issue for patients, their families and their healthcare providers. The primary ethical concern is does enrollment into clinical trials interfere with the spirit of hospice care or does it offer hope to a dying patient? Identifying issues that exist globally may help to increase enrollment by advance stage patients while at the same time moving early phase clinical trials forward and onto the phase II/III stage of study. Phase I trials are not designed with curative intent and phase I agents are not likely to prolong life or change the course of a disease. The life expectancy of phase I cancer patients’ averages between 5-6.5 months. Hospice providers and research investigators are in agreement that phase I clinical trials should be open and available to advanced stage lung cancer patients who are concurrently enrolled in hospice care. Overcoming the barriers and obstacles for advanced stage lung cancer patients to participate in early stage clinical trials can only happen in the setting of a committed multidisciplinary research team.Methods to utilize in an effort to move toward that goal include: (1) recognizing the importance of patient and family education, (2) recognizing the importance of healthcare provider education and awareness, (3) careful review and reinforcement of the informed consent process, (4) identifying and recognizing the potential benefit of phase I clinical trial enrollment for advanced stage lung cancer patients – clinical and altruistic, (5) recognizing and assisting patients and families with individual barriers and obstacles to participation and (6) employing effective marketing, recruiting and screening methods that are multidisciplinary in approach. Thoracic Oncology Nurses are well suited to serve as educators, advocates, resources, facilitators, and intermediaries. Nurses traditionally spend a greater amount of time in direct patient care and family interaction. Expanding and clarifying clinical information patients receive from their treating physicians is a vital role nurses play in ensuring patients are well informed and compliant with their plan of care. This is a model that can and has been extended into the realm of clinical trial work.Studies have shown that nurses play an important role in educating and recruiting cancer patients in clinical trials.A randomized clinical trial compared nurses with surgeons recruitment of patients into a clinical trial for prostate cancer and the results indicated that surgeons and nurses were equally as effective in their recruiting and educating abilities and effectiveness. With the proper education about early stage clinical trials, the conduct of clinical research, knowledge of the disease process of advance stage lung cancer and a high degree of self-motivation, thoracic oncology nurses are well suited to improve access and enrollment of advanced stage lung cancer patients into early phase clinical trials.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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MO27 - Patient Centred Care (ID 141)
- Event: WCLC 2013
- Type: Mini Oral Abstract Session
- Track: Nurses
- Presentations: 2
- Moderators:C. Broderick, J. McPhelim
- Coordinates: 10/30/2013, 10:30 - 12:00, Bayside 104, Level 1
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MO27.07 - Holistic Needs Assessment - What the patient doesn't tell us (ID 2813)
11:10 - 11:15 | Author(s): J. White
- Abstract
- Presentation
Background
All cancer survivors should have a personalised assessment and care plan, and support to self manage their condition (UK DoH 2010) The SPARC (Sheffield Profile for Assessment and Referral to Care) is a tool designed to be completed by the patient, with support from carers if needed, and forms the starting point for the holistic needs assessment process. SPARC is a screening questionnaire that explores a variety of issues and may help the patient/carers to reflect on their needs. The SPARC assessment tool was evaluated for its application utilising lung cancer patients who attended the Lung Cancer Clinic in Rotherham from 2011-2012.Methods
100 patients responses utilising the SPARC assessment tool were analysed at various time points of their pathway including diagnosis, post treatment, disease recurrence and 5 years post discharge.Results
The results analysed were in the domains of physical symptoms, communication and information issues, treatment issues, psychological symptoms and distress thermometer outcomes. Key results showed that: - all patients suffered with common symptoms from lung cancer; - were mostly concerned about the effect that their illnes was having on their family or other people; - many required input to help with their personal affairs; - psychological symptoms were evident in a significant proportion of patients; - the distress thermometer was an appropriate tool in this clinic. The results will be shown in detail in the poster.Conclusion
The SPARC assessment tool is an efficient and validated audit tool for assessing patient concerns and to provide feedback to the patients healthcare team. In Rotherhamm the tool will continue to be utilised and evaluated and is offered to all patients at the first post treatment phase and when no further active treatment is planned. The tool is an appropriate audit tool for assessing patient concerns and to provide feedback to clinicians and community health care teams.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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MO27.09 - Guideline for Telephone Follow Up for Patients Undergoing<br /> Thoracic Surgery (ID 1592)
11:20 - 11:25 | Author(s): J. White
- Abstract
- Presentation
Background
Lung cancer affects nearly 41, 500 people per year in the United Kingdom (UK) of which 5000 (12%) will undergo major lung resection for primary lung cancer with approximately 15% of all patients having complications post operatively. Once the patient develops a post surgical pulmonary complication mortality increases from 0.5% to 12%, ITU admission rate increases from 1.5% to 26% and the length of stay increases from 5 to 14 days. The UK National Lung Cancer Forum for Nurses have produced a Guideline for Telephone Follow Up for Patients Undergoing Thoracic Surgery . The aim of the Guideline is to help to provide a telephone follow up service to patients to reduce rates of re-admission and to improve patients satisfaction of their care. The guideline was produced following an audit of patients who had undergone thoracic surgery and a consensus of expert opinion within the thoracic surgical speciality.Methods
In 2012 a retrospective audit of patients who had lung surgery was undertaken by UK National Lung Cancer Forum for Nurses Thoracic Surgical Group (TSG) in 2012 to assess the timing of intervention after discharge and what assessments would be important to patients. Following a literature review, opinions gathered from Thoracic Surgeons (who worked with the TSG members) and other Lung Cancer Nurse Specialists an assessment was made on how best to support patients after lung surgery. The guideline was developed through regular meetings of the TSG and was developed following the audit, literature review and consideration of the expert views provided.Results
The audit data was collected from 147 patients from across four Thoracic Surgical Centres in the UK and received 439 comments and focused specifically on post-operative care. The data showed that the consensus opinion from patients was that a preferred interval for post-operative assessment by telephone was between two and seven days after discharge and provided information on the aspects of care that were important to them. The aspects of care that were important to patients included wound management, pain, breathlessness, activity, anxiety, constipation, fatigue and sleep. Following the literature review and expert opinion gathered from Thoracic Surgeons and Clinical Nurse Specialists the decision was made to produce the Guideline for Telephone Follow Up for Patients Undergoing Thoracic Surgery for which can be used by any health professional. The guideline includes assessment tools and interventions utilising best available evidence to assist in the identification of concerns or problems that a patient may face after thoracic surgery. The full guideline can be found at www.nlcfn.org.ukConclusion
This guideline aims to help support health professionals in the provision of a follow up service to patients after thoracic surgery. The audit of patients who had undergone lung surgery helped to focus on the problems that patients had identified as being important to them and, together, with best available evidence and expert consensus opinion allowed the development of this guideline. The guideline is being utilised in thoracic centres in the UK and could be adapted for use in other countries.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O07 - Supportive and Surgical Care (ID 136)
- Event: WCLC 2013
- Type: Oral Abstract Session
- Track: Surgery
- Presentations: 1
- Moderators:M. Culligan, K.A. Mooney
- Coordinates: 10/28/2013, 10:30 - 12:00, Bayside Gallery A, Level 1
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O07.05 - Guidelines to Prepare and Support Patients Undergoing a Lung Resection (ID 101)
11:15 - 11:25 | Author(s): J. White
- Abstract
- Presentation
Background
Lung cancer affects nearly 40,000 patients per year in the UK of which 5000 (12%) will undergo major lung resection for primary lung cancer. Approximately 15% of patients will have complications post operatively. Once the patient develops a post surgical pulmonary complication mortality increases from 0.5% to 12%, ITU admission rate increases from 1.5% to 26% and the length of stay increases from 5 to 14 days. A Lack of preparedness prevents patients immediately engaging in post operative activities successfully and can result in an increase in patient’s anxiety, post operative complications and length of stay in hospital. The United Kingdom National Lung Cancer Forum for Nurses Thoracic Surgical Group (TSG) has produced this Guideline to aid health care professionals in the preparation and support of patients undergoing a lung resection with an aim to promote patient self management.Methods
Following a literature review and discussion amongst this specialist group the Guideline was developed focusing on key topic areas and interventions which included: poor nutrition, before and during the healing process is associated with poor wound healing risks of hospital death and pulmonary complications after lung cancer resection are increased by smoking patients who receive a multi-disciplinary rehabilitation and early mobilisation achieve earlier discharge from hospital and significantly reduce in hospital morbidities and complication rates patient’s satisfaction regarding pain management significantly correlates to the preoperative information they have received good quality patient information is vital in reducing patient’s anxiety and improving the overall patient experienceResults
The Guideline was developed to support any health professional involved in the provision of care for patients who are undergoing thoracic surgery. The Guideline includes information for health professionals providing examples of current best practice and information for patients. The aim of the Guideline is to support self management, support patients through the surgical pathway, and improve patient outcomes and patient experience. The full guideline can be found at http://www.nlcfn.org.uk/editorimages/Guidelines%20to%20Prepare%20etc.pdfConclusion
The Guideline is relevant to all patients who are undergoing a lung resection. The Guideline includes a series of broad statements and where necessary local procedures should be developed to complement the guidelines in each clinical area. The Guideline compliments the Surgical Follow Up Guideline also produced by the NLCFN Thoracic Surgical Group.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O19 - Support and Palliation I (ID 138)
- Event: WCLC 2013
- Type: Oral Abstract Session
- Track: Nurses
- Presentations: 2
- Moderators:Y. Chen, J. Ingham
- Coordinates: 10/29/2013, 10:30 - 12:00, Bayside 104, Level 1
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O19.02 - Developing Guidance For The Supportive And Palliative Care Of Lung Cancer And Mesothelioma Patients And Their Carers (ID 84)
10:40 - 10:50 | Author(s): J. White
- Abstract
- Presentation
Background
Lung cancer remains the United Kingdom's commonest cause of cancer death and accounts for 1 in 14 of UK deaths from cancers. Approximately 41,428 new cases of lung cancer and 2500 new cases of mesothelioma are diagnosed in the UK (CRUK : Cancer Research UK 2009.) Evidence shows eighty per cent of people will present with advanced disease and the majority of these will die within a year of diagnosis (CRUK 2009.) There is a large amount of evidence in existence to support end of life care but this is very generic in nature. Consensus opinion from the National Lung Cancer Forum for Nurses recognised the need for specialist guidance for lung cancer and mesothelioma patients to enhance their end of life experience and to inform health care professionals who are caring for this group of patients. The focus of the project was to develop guidance driven by evidence from patients and carers, to focus on issues highlighted by them that were important. Previous guidance produced had not had this direct focus.Methods
This guidance has been developed over an eighteen month period by a dedicated working party with expertise in caring for lung cancer and mesothelioma patients and carers and incorporating current evidence and guidance which was reviewed extensively. The document provides detailed supportive and palliative care specialist interventions to assist any health care professional who is caring for a patient with advanced lung cancer or mesothelioma. The guidance is focused around nine key elements that were identified in work carried out by the Health Experience Research Group at the University of Oxford. Cancer patients identified nine key areas of their care that were important to them or that they found to be lacking. Holistic approach to care. Getting the bad news. Care co ordination. Responsiveness and ease of access to benefits and support. Pain control and symptom management. Staff attitudes and empathy. End of life choice and the actual experience. Carer focus. Each of these nine key elements are addressed within the guidance. Recommendations are made based on evidence and specialist experience. Good practice examples are included collected from a wide range of lung cancer services across the United Kingdom to assist users to develop their own practice.Results
The guidance was completed and published in Novmber 2012. The guidance provides a usable document with evidence and practice examples to assist health care professonals to improve supportive and palliative care within their area. The document is being diseminated locally by specialist lung cancer nurses and nationally via the National Lung Cancer Forum for Nurses.Conclusion
Although recently published and to date has not been formally evaluated, this guidance has been well received by health care professionals and organisations associated with the care of lung cancer and mesothelioma patients. References 1. Cancer Research UK (2009) : Incidences of Lung Cancer (online) Cancer Research UK. Available from 2. Health Experience Research Group (HERG) University of Oxford, GC Associates, Unpublished.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O19.05 - Guidance for the Assessment of Patients following Palliative Radiotherapy for Lung Cancer (ID 112)
11:15 - 11:25 | Author(s): J. White
- Abstract
- Presentation
Background
Palliative radiotherapy to the thorax is very effective at managing symptoms and improving quality of life but can also have significant toxicity. Dosing decisions are a balance between potential benefit and toxicity in patients whose prognosis and performance status is poor and who are likely to have multiple co-morbidities and complex causation of symptoms. Observations made by the members of the Uinted Kingdom National Lung Cancer Forum for Nurses (NLCFN) raised concerns that this group of patients may not be receiving optimal intervention and support following palliative radiotherapy. The NLCFN has therefore produced Guidance for the Assessment of Patients following Palliative Radiotherapy for Lung Cancer to aid Lung Cancer Nurse Specialists (LCNS) in the assessment and intervention of patients undergoing low dose palliative radiotherapy for symptoms related to lung cancer and side effects from treatment.Methods
A NLCFN working group was created to analyse the observation of sub-optimal care following palliative radiotherapy. A literature review was undertaken to identify current best evidence and practice. A survey was undertaken to question LCNS, Clinical Oncologists, as well as Radiographers who could provide whether there was a need for such a guideline. 53 responses were received. Following analysis of the survey and discussion within the working group the Guidance for the Assessment of Patients following Palliative Radiotherapy for Lung Cancer was produced. The guidance aims to aid LCNS in the assessment and intervention of patients undergoing low dose palliative radiotherapy for symptoms related to lung cancer and side effects from treatment. Table 1 Figure 1Figure 2Figure 3Results
Following the literature review, although there was significant evidence of toxicity profiles and effects of treatment, there were no examples of how to address the support needs of patients following palliative radiotherapy to the thorax. Of the 53 responses, 75% said that there was a need for the service, 54% were not aware of current practice in radiotherapy follow up support, with 55 % stating that a review should take place between 1 and 2 weeks after treatment. The working group produced the guideline following discussion in relation to these outcomes.Conclusion
The Guidance for the Assessment of Patients following Palliative Radiotherapy for Lung Cancer aims to guide LCNS and the treating teams in the assessment and intervention of patients undergoing low dose palliative radiotherapy for symptoms related to lung cancer. The guideline contains flow charts with recommended interventions together with documentation proforma and Common Toxicity Criteria. In the UK patients are treated in Cancer Centres and often repatriated to secondary care for review and follow-up. The formal assessments provided in the Guidance can be implemented either in the clinic, telephone or home visit. The guideline could be adapted for use in other health care systems other than the UK and can be found at http://www.nlcfn.org.uk/NLCFN-guidelines.htmOnly Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26 - Support and Palliation II (ID 140)
- Event: WCLC 2013
- Type: Oral Abstract Session
- Track: Nurses
- Presentations: 2
- Moderators:J. White, Y. Lai
- Coordinates: 10/29/2013, 16:15 - 17:45, Bayside 104, Level 1
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O26.01 - The impact of the lung cancer clinical nurse specialist on access to anti-cancer treatment (ID 1018)
16:15 - 16:25 | Author(s): J. White
- Abstract
- Presentation
Background
The National Lung Cancer Audit (NLCA) (NHS Information Centre, 2011) reports annually on services provided to 38,000 lung cancer patients in the nited Kingdom (UK). The 2010 NLCA reported that only 58% of lung cancer patients in England and Wales received active treatment (chemotherapy, surgery and radiotherapy), with only 14% of patients receiving surgery. Lung Cancer Nurse Specialists (LCNS) make an important contribution to patient care and patient experience and their input is captured in the audit. The 2010 NLCA revealed a possible association between access to a LCNS and access to treatment: 64% of patients seen by a LCNS received anti-cancer treatment compared to 30% of those who did not (Ford, 2011, The Lancet 2011). The reason for this observation cannot be ascertained from the NCLA data. Thus investigation outside of the audit is required. This study begins that process using case study methodology. The study is funded by a grant from the General Nursing Council Trust. The aims of this study are to explore the role of the LCNS within the lung cancer multi-disciplinary team (MDT), identify ways the LCNS can increase treatment access for people with lung cancer and generaterecommendations for MDTs and for future research.Methods
A collective case study, comprising four individual LCNS in four different lung cancer MDTs (McDonnell, 2012, Stake 1995). LCNS cases were selected on the basis of variation in access to treatment rates and access to a LCNS according to the NLCA data. The four LCNSs also had different models of working within the MDT and patient pathway. Methods included in-depth individual interviews with the LCNS and clinical lead plus four other MDT members, giving a total interview sample of 24. Observation of practice and documentary analysis were also used. Findings will be tested further in group interviews over the summer.Results
These findings provide insight into how the LCNS works across the patient pathway to influence access to treatment, while maintaining patient preference as central to practice. The findings are presented here in four themes: practice approaches, people, places and facilitators, with illustrations of how factors combined to increase or decrease access to treatment. Approaches to LCNS practice identified in the study included negotiating, brokering and co-ordinating in order to maximise treatment access and maintain patient focus. The range of people and places the LCNS works with across different disciplines, services and health sectors means they become the lynchpin to clinical treatment decisions. The study indicates how workload, relationships, job security and organisational structures operate as key facilitators to effective treatment decision makingConclusion
This in-depth qualitative study provides valuable insights into the complex landscape that MDTs operate within and helps to explain why the observed association between seeing a LCNS and access to treatment may occur. The study illustrates the value of qualitative research in understanding quantitative data such as that generated by national registries and audits. Recommendations for MDTs and data capture in the NLCA audit are considered.Only Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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O26.02 - Understanding the Value of Lung Cancer Nurse Specialists (ID 2243)
16:25 - 16:35 | Author(s): J. White
- Abstract
- Presentation
Background
The UK National Lung Cancer Forum for Nurses together with the Roy Castle Lung Cancer Foundation have produced a report which aims to showcase the difference Lung Cancer Nurse Specialists (LCNS) make to the lives of patients with lung cancer and their families. Eleven recommendations were made after an examination of peoples experiences of care delivered by LCNSs in addition to LCNSs own accounts of how they help to improve patient outcomes. The recommendations, combined with existing evidence of the positive impact of LCNSs on patient experience from the Cancer Patient Experience Survey and outcomes shown in the National Lung Cancer Audit, builds a compelling picture of the positive value of LCNSs. The report is called Understanding the Value of Lung Cancer Nurse Specialists.Methods
The National Lung Cancer Audit data was used to gather information about whether patients had been seen by a LCNS and at what point in their pathway. A survey was conducted of patients with lung cancer and their carers with the aim of uncovering people`s experiences of the care delivered by LCNS. A survey of LCNS own accounts of how they help to improve patient outcomes was also undertaken. Information was taken from the Cancer Patient Experience Survey in England to assess the influence that Clinical Nurse Specialists had on the patient`s experience of care. Evidence was analysed from a number of different sources to highlight the potential efficiency savings that LCNS could make due to their role.Results
Results from the Cancer Patient Experience Survey showed that one of the most important findings being that those patients with access to a CNS gave more positive scores of experience than those without. When considering efficiency savings, one study found that service improvments along the lung cancer pathway led by LCNS could release about 10% of cancer expenditure in the area. The National Lung Cancer Audit revealed that around two thirds of patients seen by a LCNS went on to receive active treatment compared to less than a third who did not see a LCNS who were given active treatment.Recommendations from the report
1 LCNS should be involved in the pre-diagnostic phase of care of suspected patients with lung cancer 2 All national clinical guidelines on lung cancer treatment should reflect the important role played by LCNS 3 NHS Commissioners / providers should ensure that there are sufficient numbers of LCNS 4 All patients should have equitable access to a LCNS at the time of diagnosis 5 LCNS posts should be protected to ensure that patients and their families are offered adequate support 6 LCNS should be provided with necessary resources to aid smoking cessation 7 More research should be undertaken to understand the reasons for the correlation between LCNS input and receipt of active treatment 8 LCNS follow up after treatment should be offered to all patients 9 LCNS should be encouraged to offer nurse led clinics 10 LCNS should be recognised as the patient`s advocate at multidisciplinary team meetings to deliver patient centered care 11 Patients with lung cancer should have access to a LCNS at all stages of their pathway including end-of-life care Conclusion
The report examines the information made available and the role of the LCNS with the aim of helping to understand that vital contribution they make to the delivery of high quality care and to improved outcomes for patients with lung cancer. The report can be found at http://www.roycastle.org/Resources/Roy%20Castle/Documents/PDF/UnderstandTheValueOfLungCancerNurseSpecialists_V03.pdfOnly Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login, select "Add to Cart" and proceed to checkout. If you would like to become a member of IASLC, please click here.
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P1.25 - Poster Session 1 - Nurses (ID 248)
- Event: WCLC 2013
- Type: Poster Session
- Track: Nurses
- Presentations: 1
- Moderators:
- Coordinates: 10/28/2013, 09:30 - 16:30, Exhibit Hall, Ground Level
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P1.25-001 - The National Lung Cancer Forum for Nurses (NLCFN) (ID 785)
09:30 - 09:30 | Author(s): J. White
- Abstract
Background
Lung cancer affects nearly 40,000 patients per year in the UK and despite recent improvements in treatments, outcomes remain poor (NCIN 2012). Therefore the delivery of high quality care is vital. Lung Cancer Nurse specialists (LCNS) are well placed to provide holistic care, ensuring needs are addressed throughout the pathway, and there is an improvement in outcomes and experience for patients. The National Lung Cancer Forum for Nurses (NLCFN) was established in 1999 and is a national organisation in the United Kingdom (UK) developed to support lung cancer nurses through education, sharing best practice and peer support through a national network. The Forum has grown inexplicably and its success can be measured by the links and networks for nurses involved in caring for people with lung cancer as well as the strategic groups it is involved with nationally and internationally. The members are from diverse backgrounds of palliative care, respiratory medicine and thoracic oncology which results in a wealth of experience and knowledge. The NLCFN has approximately 280 members.Methods
The NLCFN runs a Research Interest Group (RIG) and a Thoracic Nurses Subgroup (TNS) and both groups are active in improving practice and initiating research projects in lung cancer. The NLCFN proactively supports nursing research and offers a small grant award scheme each year to support lung or thoracic nurses who wish to develop a research project. Collaboration between the Forum and Sheffield Hallam University has led to the development of funding for a part-time PhD studentship. The RIG has been successful in obtaining a research grant to explore in more detail the evaluation of the LCNS role in treatment access. The NLCFN also hosts a website where patients, carers and clinicians can assess up-to-date information on lung cancer management, treatments and interventions and find out about local and national services for lung cancer patients. There is a NLCFN members section which houses guidelines and relevant documentsResults
Over the last 10 years the NLCFN has developed into a national voice on clinical and strategic issues and as such is represented on all lung cancer improvement and strategic groups in the UK. The NLCFN have produced several documents and guidelines which are available to all health care professionals.Conclusion
The number of Lung Cancer Nurse Specialists has increased since the introduction of the role in 1995. They play a vital role in supporting patients and carers throughout their pathway from pre-diagnosis to end of life care and ensuring that all their needs are addressed. The NLCFN aims to provide the LCNS with a good infrastructure for networking and support as well as continually striving for better care for their patients.
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P3.25 - Poster Session 3 - Nurses (ID 250)
- Event: WCLC 2013
- Type: Poster Session
- Track: Nurses
- Presentations: 1
- Moderators:
- Coordinates: 10/30/2013, 09:30 - 16:30, Exhibit Hall, Ground Level
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P3.25-001 - Increasing research utilisation and capacity in lung cancer nursing in the UK (ID 287)
09:30 - 09:30 | Author(s): J. White
- Abstract
Background
The National Lung Cancer Forum for Nurses (NLCFN) is a UK professional organization which has a membership of around 280 Lung Cancer Nurse Specialists (LCNS) who primarily with lung cancer patients. LCNSs are the multi-disciplinary team members who spend the most time with patients. Therefore they add a unique and valued contribution to the debate regarding research priorities in lung cancer. The NLCFN is committed to developing the evidence base to inform the effectiveness and quality of their clinical care. The NLCFN recognized a need to develop research skills and capacity amongst its membership and facilitate research collaborations between academics and practitioners. To this aim the NLCFN established a Research Interest Group (RIG) in 2009. This paper summarizes a research development project undertaken by the NLCFN to increase research utilisation and capacity in lung cancer nursing.Methods
A structured approach was taken building on research into evidence utilisation in health. (Birdell et al, 2005, Tod et al 2004, Palfreyman et al 2003a/b). Research development activity focused on four key areas, roles and responsibilities, relevance, relationships and partnerships, and organisational culture.Results
Over a four year period the NLCFN has successfully developed its research activity and the infrastructure to support subsequent growth. Roles: The RIG is chaired jointly by a Professor of Health Services Research and NLCFN Chair. All NLCFN members are encouraged to have a role by contributing to the critical discussion regarding evidence. However, a core group of research active members take responsibility to lead on research. The RIG has provided a mechanism for the NLCFN to liaise with key national lung cancer groups and committees regarding evidence for practice and new project development, for example a current national project exploring the contribution of lung nurse specialists to clinical trial recruitment. Research relevance is guided by an on-going research prioritisation exercise. Research partnerships have been developed through shared membership of the RIG between clinical and academic staff. The partnership has fostered five applications for research funding from a range of funding organisations, two of which have been successful, one is currently in review. Funded projects include an evaluation of the LCNS role in treatment access. Another is evaluating the use of support roles in lung multi-disciplinary teams. Current applications include an analysis of treatment and health outcomes using linked national data sources. In addition a new PhD studentship has been developed through a collaboration between the NLCFN and Sheffield Hallam University. Regular meetings, good communication, sharing of good practice and support provide a culture to allow research ideas to flourish.Conclusion
In four years the NLCFN has made remarkable progress regarding research development and capacity building. By taking a structured and systematic approach the outcomes have been impressive. It has supported LCNSs to be a valued partner in research prioritisation and in generating evidence to support lung cancer practice at a local and National level. The foundations for research growth have been built and an infrastructure developed to enhance future nursing engagement in research at all levels from application to leadership.
