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M. Johnson



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    P2.09 - Poster Session/ Nursing and Allied Professionals (ID 227)

    • Event: WCLC 2015
    • Type: Poster
    • Track: Nursing and Allied Professionals
    • Presentations: 1
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      P2.09-003 - Identifying Research Questions in Disclosure of Risk of Recurrence following Lung Cancer Surgery Using a Critical Synthesis of the Literature (ID 280)

      09:30 - 09:30  |  Author(s): M. Johnson

      • Abstract
      • Slides

      Background:
      Although surgery for lung cancer is often a successful treatment, very little is known about how patients cope and live with the possibility of recurrence of cancer in the future. Two published literature reviews on prognosis disclosure in cancer care have identified no papers focused specifically on risk of recurrence in post-surgical lung cancer patients. Aims were to develop a synthesis of the current literature around prognostic disclosure in cancer care in order to: · Identify a thematic framework that can be used to provide a model for the factors present in prognostic disclosure in cancer care. · Identify research questions that will inform future study into disclosure of recurrence risk in lung cancer patients following potentially curative surgery.

      Methods:
      A review of published studies on prognostic disclosure in cancer care up until the end of 2003 was used as a starting point. An updated review was undertaken and a systematic approach was taken to searching the literature from 2004 – June 2014. Data were extracted from the identified papers using a comprehensive data extraction form. Codes were assigned to key elements of data within the results and conclusion sections of the papers. Critical interpretive synthesis was used to explore themes by constructing an integrative grid to examine findings between studies and to identify similarities and contradictions. Themes from the original review were identified and compared to the updated findings. A further framework grid was constructed to investigate between-theme relationships and to help identify “synthetic constructs” and a thematic framework.

      Results:
      Twenty papers were identified in the updated review and were diverse in their objectives and patient groups. Themes were identified in these studies and in the original review covering the nature of prognostic information, patient need for prognostic information, patient need to maintain hope, balancing hope and realism, patient factors, disease factors and clinician factors. A thematic framework was developed. Future research questions were framed around disclosure of risk of recurrence following lung cancer surgery.

      Conclusion:
      There are no studies looking at prognostic information-giving in post-surgical lung cancer patients. Patients generally want prognostic information, but also want information that supports hope. Patients appear to struggle to fully understand complex prognostic information and value help making sense of information. Working with patients to understand and manage the uncertainty of their situation may be particularly valuable. Future research questions include: · How do patients and their clinical teams manage information disclosure about possible cancer recurrence following lung cancer surgery? · What is the emotional impact on patients of the uncertainty of potential recurrence following lung cancer surgery? · What information do patients want regarding recurrence risk? · What strategies do patients and professionals currently use to help manage the uncertainty of potential recurrence after lung cancer surgery? · Are there strategies or interventions aimed at managing uncertainty in this group that could have wider application for patients?

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